Stigma, Resilience, and Life Quality in Parents of Autistic Children
Journal name: The Malaysian Journal of Medical Sciences
Original article title: Affiliate Stigma, Resilience and Quality of Life among Parents of Children with Autism Spectrum Disorder in Two Public Hospitals in Kelantan, Malaysia
The Malaysian Journal of Medical Sciences (MJMS) is a peer-reviewed, open-access journal published online at least six times a year. It covers all aspects of medical sciences and prioritizes high-quality research.
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Original source:
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Noor Shuhada Salleh, Li Yoong Tang, Maruzairi Husain, Khatijah Lim Abdullah, Yee Cheng Kueh
The Malaysian Journal of Medical Sciences:
(A peer-reviewed, open-access journal)
Full text available for: Affiliate Stigma, Resilience and Quality of Life among Parents of Children with Autism Spectrum Disorder in Two Public Hospitals in Kelantan, Malaysia
Year: 2024 | Doi: 10.21315/mjms2024.31.3.17
Copyright (license): CC BY 4.0
Download the PDF file of the original publication
Summary of article contents:
Introduction
Autism Spectrum Disorder (ASD) can significantly impact not only the affected individuals but also their families, especially parents who often experience challenges related to stigma. This study explores the intertwining concepts of affiliate stigma, resilience, and quality of life (QoL) among parents of children with ASD. The challenges related to parenting a child with autism can lead to an internalization of stigma, also referred to as affiliate stigma, affecting the mental health and well-being of parents. The study aimed to investigate how these psychological factors relate to each other and how various demographic variables influence them.
The Interplay of Affiliate Stigma and Resilience
One of the key findings of the study is the significant inverse relationship between affiliate stigma and both resilience and quality of life. Parents experiencing higher levels of affiliate stigma tend to report lower resilience and a diminished quality of life. Conversely, increased resilience is associated with better quality of life outcomes. This relationship underscores the importance of addressing the stigma that parents face in order to foster their resilience and improve their overall well-being. Factors such as the father’s employment status and the mother's educational level, as well as the presence of comorbidities in children and perceived severity of ASD, were found to play a significant role in shaping these experiences.
Conclusion
This study sheds light on the multifaceted challenges faced by parents of children with ASD, particularly the impact of affiliate stigma on their resilience and quality of life. The findings suggest that interventions targeting stigma reduction and resilience-building are essential for enhancing the overall quality of life for these parents. Policymakers and healthcare providers should consider these insights when designing support systems and resources aimed at helping families manage the complexities of raising a child with autism. By focusing on the unique needs and experiences of parents, particularly in a socio-cultural context like Malaysia, we can contribute to a more supportive environment for families affected by ASD.
FAQ section (important questions/answers):
What is the focus of the study presented in the text?
The study explores affiliate stigma, resilience, and quality of life (QoL) among parents of children with autism spectrum disorder (ASD) in Kelantan, Malaysia.
What methods were used in the research study?
A cross-sectional study involving 144 parents was conducted using convenience sampling. Data analysis included Pearson correlation and multiple linear regression to assess relationships between variables of affiliate stigma, resilience, and QoL.
What were the key findings of the study?
The study found that higher affiliate stigma was associated with lower resilience and QoL, while higher resilience was linked to improved QoL among parents of children with ASD.
What implications do the findings have for healthcare practitioners?
The findings suggest that healthcare practitioners should recognize and address factors contributing to affiliate stigma to support the resilience and QoL of parents, ultimately enhancing care for children with ASD.
Glossary definitions and references:
Scientific and Ayurvedic Glossary list for “Stigma, Resilience, and Life Quality in Parents of Autistic Children”. This list explains important keywords that occur in this article and links it to the glossary for a better understanding of that concept in the context of Ayurveda and other topics.
1) Study (Studying):
The research encompasses the examination of parental experiences related to raising children with autism spectrum disorder (ASD). It aims to analyze the connections among affiliate stigma, resilience, and the quality of life, especially focusing on the family's challenges and coping mechanisms in a developing country context, such as Malaysia.
2) Table:
Tables within the research provide a structured format to present quantitative data, summarizing the sociodemographic characteristics of participants and highlighting significant statistical findings. This helps in visualizing the relationships and differences in parental experiences of stigma, resilience, and quality of life among various demographics analyzed in the study.
3) Life:
In the context of this study, 'life' pertains to the quality of life experienced by parents of children with ASD. The research evaluates how various factors contribute to or detract from parents' perceived quality of life, drawing links to resilience and the stigma associated with raising a child with a disability.
4) Quality:
Quality denotes the standard of life that parents of children with ASD experience. This includes mental, emotional, and social dimensions, and how these dimensions are affected by various factors such as stigma, resilience, and the educational and support levels available in their community.
5) Family:
Family plays a central role in this study as the primary unit facing challenges stemming from raising a child with ASD. The study emphasizes how the familial dynamics, support systems, and resilience can impact collective well-being, highlighting the need for understanding family-oriented interventions to improve life quality.
6) Mental health:
The concept of mental health is crucial to the study as it investigates affiliate stigma and its negative effects on the mental well-being of parents. Understanding mental health dynamics informs strategies to support parents in coping with ongoing stressors and developing resilience in challenging parenting environments associated with ASD.
7) Depression:
Depression is identified as a possible effect of affiliate stigma in parents. This study considers the implications of stigma on the mental health of caregivers and aims to provide insights into prevention measures and psychological support for families struggling with depression due to the challenges posed by ASD.
8) Indian:
The term Indian appears in discussions about cultural context, particularly regarding the experiences of parents in diverse cultural settings. The findings draw comparisons with other Asian communities while acknowledging the unique challenges faced by families in India, thus allowing for cross-cultural insights into the stigma surrounding disabilities.
9) Male:
In the study, the term 'male' often relates to the demographic of fathers and their roles within families of children with ASD. Insights into male perspectives on stigma and parenting, particularly within the Asian context, contribute to a holistic understanding of gender dynamics in caregiving.
10) Language:
Language indicates a critical component of communication and understanding in the study, especially in terms of participants' ability to comprehend surveys and scales used to measure stigma, resilience, and quality of life. Language proficiency can influence parental experiences and levels of support accessed by families.
11) Raising:
Raising pertains to the parental responsibilities and experiences involved in nurturing a child with ASD. The study sheds light on the extensive demands placed upon families and how these responsibilities can affect well-being, coping mechanisms, and the overall quality of life experienced by caregivers.
12) Rules:
Rules refer to societal expectations and norms that shape the experiences of parents raising children with disabilities. The study examines how these rules can contribute to affiliate stigma, influencing how parents perceive themselves and their situations, thus affecting their mental health and coping strategies.
13) Cina:
China is mentioned in comparative analysis within the study, especially regarding cultural perceptions of disability. Understanding the differences in stigma and acceptance between Malaysia and China provides valuable insights into the diverse challenges faced by families in different cultural contexts, contributing to a broader discourse on ASD.
14) Mental disorder:
Mental disorder denotes the psychological challenges faced by parents of children with ASD, including anxiety and depression resulting from stigma. The study aims to address how these mental health issues impact not just parents but the family unit as a whole, influencing the child's environment and growth.
15) Education:
Education is a key factor considered in the study as it influences parental perceptions and capacities to seek help. The parents' educational levels can affect their access to resources and their understanding of ASD, ultimately impacting how they cope with challenges associated with raising a child with autism.
16) Epilepsy:
Epilepsy is one of the comorbid conditions that may affect children with ASD, highlighted in the research to show the additional burden faced by families. Understanding how comorbidities like epilepsy intersect with autism care informs better support systems for affected families and their children.
17) Anxiety:
Anxiety is explicitly connected to the mental health repercussions parents face due to stigma surrounding their child's disability. The study explores how affiliate stigma contributes to heightened anxiety levels among parents and emphasizes the importance of supportive measures to mitigate these feelings.
18) Science (Scientific):
Science underlines the research methodology and data analysis foundational to the study. The application of quantitative research techniques reflects a scientific approach aimed at uncovering empirical relationships between stigma, resilience, and quality of life, offering evidence-based recommendations for improving parental mental health support.
19) Reason:
Reason pertains to the rationale behind examining parental experiences as they relate to raising children with ASD. The study seeks to understand the underlying causes of affiliate stigma and resilience levels among parents, fostering greater awareness and informing interventions to support their mental health.
20) Gold (Golden):
Golden may refer to concepts of value or highlighting key findings within the research. It can denote the strategies or resources deemed essential for enhancing parents' resilience and quality of life, showcasing 'golden' insights that can shift perspectives on supporting families with ASD.
21) Patra:
Patra is referenced to connect findings from the study to existing literature or previous research conducted by the author, particularly within the Indian context. This linkage allows for comparative analysis that bolsters the understanding of parental experiences across different cultural terrains.
22) India:
India is relevant in discussing cultural implications of raising children with ASD, often compared with Malaysian experiences. Understanding participating families' perceptions of stigma in both countries allows for collaborative learnings to improve support systems and resources available to parents facing similar challenges.
23) Trade:
Trade touches on sociocultural and economic aspects impacting families, particularly regarding access to education and support services. The relationship between economic resources, stigma, and parental quality of life is essential to understanding the broader implications of parenting children with ASD.
24) Shame (Same):
Shame is a significant emotional response stemming from affiliate stigma that can influence mental health. The study examines how feelings of shame affect parental resilience and quality of life, advocating for supportive interventions that address these emotional burdens in caregiving contexts.
25) Aksu (Akshu):
Aksu's mention links the findings of the study to the contributions and perspectives of individuals in the field of psychology or public health, grounding the research in recognized scholarly discourse that aims to expand understanding of parenting dynamics with ASD.
26) Chun:
Chun could relate to established research findings or theoretical frameworks that influence current thought on stigma and mental health in parenting children with autism. Its mention aids in constructing a narrative that connects various scholarly contributions towards understanding affiliate stigma.
27) Bell:
Bell typically references study authors or key contributors to the literature regarding stigma and family dynamics. Their findings often shape the discourse on autism-related challenges, emphasizing the need for collaborative approaches to tackle the nuances of parenting experiences.
28) Ter:
Ther might refer to therapeutic interventions or practices aimed at supporting families dealing with autism. The exploration of effective therapeutic methodologies can improve quality of life and resilience among parents, providing strategies to mitigate the challenges recognized in the research.
29) Cultural diversity:
Cultural diversity signifies the varied experiences and perspectives stemming from different cultural backgrounds influencing parental actions and feelings towards stigma. The study underscores how cultural acceptingness affects perceptions and responses to raising children with ASD, emphasizing the need for sensitivity in support interventions.
30) Eastern India:
Eastern India highlights a specific geographic context relevant to discussing regional attitudes and stigma associated with disabilities. This focus allows the study to draw comparative insights, shedding light on how regional differences shape the experiences of families raising children with autism.
31) Thalassemia:
Thalassemia is mentioned as a comorbidity that might affect children with ASD, illustrating the increased challenges faced by parents. Understanding the intersection of autism and other medical conditions like thalassemia is crucial for developing comprehensive support systems for affected families.
32) Calculation:
Calculation refers to the statistical analysis employed in the study to understand the relationships among different variables related to parental experiences. Methods such as regression analyses and correlation coefficients are critical for deriving meaningful insights from the collected data about stigma, resilience, and quality of life.
33) Discussion:
Discussion represents the critical examination of findings within the study, connecting empirical results to broader themes in autism research. It integrates various aspects of parental experiences, synthesizing knowledge to inform healthcare providers and policymakers about effective strategies for family support.
34) Developing:
Developing indicates the context of the study being conducted in a developing country, shaping the social and economic factors influencing parental experiences with autism. This context is crucial for understanding the unique challenges and resources available for families in such settings.
35) Activity:
Activity relates to engagement in supportive communities or therapeutic interventions that families may seek out for children with ASD. It demonstrates the importance of active involvement in social and educational opportunities, which significantly contribute to the family’s resilience and overall well-being.
36) Training:
Training denotes the initiative in enhancing the capabilities of parents and professionals dealing with autism. Emphasizing effective training programs is critical for equipping caregivers with strategies to manage challenges, thereby improving resilience and overall quality of life for families.
37) Learning:
Learning encompasses the acquisition of knowledge and coping strategies by parents in navigating the complexities of raising a child with ASD. This dynamic process is essential for fostering adaptive responses to challenges, ultimately influencing the family's resilience and quality of life.
38) Malaya:
Malaya refers to the geographical and historical context relevant to the study, highlighting the sociocultural dynamics of the region where the research takes place. Understanding these local characteristics is vital for contextualizing parental experiences of stigma and resilience within families.
39) Raja:
Raja indicates a cultural or historical reference that might shape societal attitudes toward disabilities and parenting practices in the region. The understanding of such influences is important for addressing stigma and formulating responsive support frameworks for families.
40) Post:
Post can signify the documentation and dissemination of research findings, ensuring insights are shared with stakeholders in healthcare and policy. This contributes to ongoing discussions on improving practices that affect families raising children with ASD.
41) Tai:
Thai may refer to the cultural dimensions associated with parenting in Southeast Asia, offering perspectives that can inform on stigma and community resources. Exploring similarities and differences across cultures can provide insights for enhancing support systems for parents facing similar challenges.
42) Mud:
Mood relates to the emotional states of parents, particularly in connection to affiliate stigma experienced when raising children with ASD. The study highlights how mood fluctuations can significantly affect resilience and overall quality of life, underscoring the need for emotional support interventions.
Other Health Sciences Concepts:
Discover the significance of concepts within the article: ‘Stigma, Resilience, and Life Quality in Parents of Autistic Children’. Further sources in the context of Health Sciences might help you critically compare this page with similair documents:
Mental health, Religious belief, Family health, Social stigma, Educational level, Older age, Statistical analysis, Quality of life, Positive relationship, Family unit, Inverse relationship, Local culture, General Hospital, Cultural acceptance, Cross-sectional study, Convenience sampling, Autism Spectrum Disorder, Psychometric properties, Co-morbidities, Mean score, Confidence interval, Sociodemographic characteristics, Sociodemographic Factors, Male to female ratio, Internal Consistency, Multiple linear regression, Coping strategies, Family income, Societal stigma, Feeding difficulties, Employment status, Pearson Correlation, Coping Mechanism, Learning difficulties, Mixed methods study, Healthcare Expenses, Family member, Monthly family income, Longitudinal research, Regression analyses, Affiliate Stigma, Linear regression analyses, Multiple linear regression model, Significant positive relationship, QoL score, Socio-demographic characteristic, Self-employed, Connor-Davidson Resilience Scale, Autistic disorder, Mother's level of education, Parenting skills, Nurse practitioners, Perceived stigma, Final model equation, Higher educational qualifications, Private services, Lower QoL.