Caregiving Burden of Malaysian Families with Older Functional Deficits
Journal name: The Malaysian Journal of Medical Sciences
Original article title: The Caregiving Burden of Older People with Functional Deficits and Associated Factors on Malaysian Family Caregivers
The Malaysian Journal of Medical Sciences (MJMS) is a peer-reviewed, open-access journal published online at least six times a year. It covers all aspects of medical sciences and prioritizes high-quality research.
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Original source:
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Patimah Abdul Wahab, Nurul Afiah Abdul Talib, Nik Noor Kaussar Nik Mohd Hatta, Sanisah Saidi, Zamzaliza Abdul Mulud, Muhammad Nubli Abdul Wahab, Hasanah Pairoh
The Malaysian Journal of Medical Sciences:
(A peer-reviewed, open-access journal)
Full text available for: The Caregiving Burden of Older People with Functional Deficits and Associated Factors on Malaysian Family Caregivers
Year: 2024 | Doi: 10.21315/mjms2024.31.1.14
Copyright (license): CC BY 4.0
Download the PDF file of the original publication
Summary of article contents:
Introduction
The increasing presence of an ageing population necessitates a closer examination of the complexities involved in caregiving for older adults, especially those with functional deficits. This study focuses on family caregivers of older individuals residing in FELDA schemes in Pahang, Malaysia, exploring the impact of caregiving on their health and well-being. Family members often provide essential and informal support to older adults who require assistance due to chronic illnesses, yet this can lead to increased psychological distress and burnout among caregivers.
Caregiving Burden: Associated Factors
The study found that the caregiving burden on family caregivers was generally mild yet influenced significantly by several factors. Notably, gender emerged as a crucial determinant, with female caregivers reporting a greater burden than their male counterparts. Additionally, the presence of chronic diseases among care recipients contributed substantially to the caregiving demands placed on family members, leading to an increase in the perceived burden. Furthermore, the functional independence of older adults acted as a significant predictor of caregiver burden; the less able care recipients were to manage daily activities independently, the greater the burden experienced by caregivers.
Conclusion
In conclusion, the study highlights the nuanced relationship between caregiving demands and the psychological burden experienced by family caregivers of older people with functional deficits in Malaysia. Understanding these dynamics is vital for developing supportive measures that could alleviate caregiver burden and improve the quality of care provided to older adults. Future research should focus on exploring diverse caregiver experiences across different urban contexts, considering factors such as social support and resilience to develop a more holistic understanding of caregiver well-being.
FAQ section (important questions/answers):
What is the purpose of the study on family caregivers?
The study investigates the caregiving burden faced by family caregivers of older individuals with functional deficits, focusing on factors that contribute to this burden and its implications for their health and well-being.
What factors influence the caregiving burden in this study?
Factors identified include the caregiver's gender, the presence of chronic diseases in care recipients, and the functional independence level of older adults being cared for. These aspects significantly impact the overall burden experienced by caregivers.
What tools were used to measure caregiving burden?
The Malay version of the Zarit Burden Interview (ZBI) was utilized to assess caregiving burden, which is a widely recognized and validated instrument for measuring the level of stress and challenges faced by caregivers.
What are the main findings of this study?
The study found that family caregivers experienced a mild burden associated mainly with the health status of the care recipients. Gender and functional independence of older adults were significant predictors of caregiving burden.
Glossary definitions and references:
Scientific and Ayurvedic Glossary list for “Caregiving Burden of Malaysian Families with Older Functional Deficits”. This list explains important keywords that occur in this article and links it to the glossary for a better understanding of that concept in the context of Ayurveda and other topics.
1) Family:
The word 'Family' refers to the essential unit in which caregiving often occurs, particularly in the context of supporting elderly relatives. Family members frequently act as primary caregivers for older individuals, influencing the emotional and physical dynamics of caregiving, as well as shaping the caregiver's burden and stress levels.
2) Study (Studying):
The word 'Study' is significant as it pertains to the systematic investigation conducted to understand the caregiving burdens experienced by family caregivers of older people with functional deficits. It emphasizes the importance of research in identifying factors affecting these caregivers, which can inform targeted interventions and support mechanisms.
3) Table:
The word 'Table' is relevant as it suggests the structured presentation of data collected during the study. It often summarizes participant characteristics, caregiving demands, and health statuses, making complex information digestible and facilitating comparisons that can help in analyzing the findings of the study effectively.
4) Disease:
The term 'Disease' is crucial as it denotes the health conditions affecting elderly individuals, which often necessitate caregiver support. Understanding the relationship between disease prevalence and caregiving burden can highlight the challenges faced by caregivers, influencing their mental health and overall well-being.
5) Life:
The word 'Life' in this context signifies the quality of existence experienced by caregivers and care recipients. It encompasses physical, mental, and social well-being, emphasizing the profound impact caregiving has on everyday life and the importance of addressing caregivers' needs for better quality of life.
6) Education:
The term 'Education' references the instructional background of caregivers, which can influence their capacity to manage caregiving tasks. Higher levels of education may result in better coping strategies, health literacy, and access to resources, potentially alleviating some of the burdens associated with caregiving for older relatives.
7) Quality:
In this context, 'Quality' pertains to the standard of care provided by caregivers and the overall quality of life for both caregivers and elderly individuals. It can influence the effectiveness of caregiving and has implications on recipient outcomes, caregiver burden, and health disparities in caregiving contexts.
8) Epilepsy:
The mention of 'Epilepsy' highlights a specific health condition that some older adults may face, leading to increased caregiving demands. Understanding the burden experienced by caregivers of individuals with epilepsy provides insights into the complexities of caregiving for chronic conditions and the psychological impact on caregivers.
9) Pur:
The word 'Poor' relates to both the socioeconomic status of caregivers and the quality of life of care recipients. Poverty can exacerbate caregiving burdens, making it important to examine how financial circumstances affect caregivers’ capabilities and the available resources for effective caregiving.
10) Chan:
The word 'Chan' likely refers to an author or researcher involved in the field of caregiving studies. By recognizing contributions from specific individuals, we can understand the ongoing research efforts and collective knowledge that informs caregiving practices and the challenges faced by caregivers in different contexts.
11) Calculation:
The term 'Calculation' reflects the methodological aspect of the study, particularly in determining sample size and statistical analyses. Accurate calculations are essential for drawing valid conclusions about caregiver burden, ensuring that research findings are statistically significant and relevant to the caregiving population investigated.
12) India:
The reference to 'India' indicates geographical relevance, as studies from different cultural and geographic settings can provide insights into caregiving dynamics. Recognizing cross-national differences helps in understanding how caregiving experiences vary globally and can inform culturally appropriate support strategies for caregivers everywhere.
13) Rules:
The term 'Rules' suggests the guidelines or criteria followed during the study's methodology, including participant selection, data collection, and analysis. Adhering to established rules ensures the integrity of research findings and makes it possible to replicate studies within the scientific community.
14) Depression:
The mention of 'Depression' highlights a psychological concern that caregivers may experience as a result of their caregiving responsibilities. This aspect of mental health is critical to understanding the emotional toll of caregiving, leading to potential interventions aimed at alleviating caregiver stress and enhancing well-being.
15) Substance:
In the context of caregiving, 'Substance' refers to substance use, which may affect both caregivers and care recipients. Understanding the relationship between substance use and mental health is significant, as caregivers may resort to substances as a coping mechanism, impacting their capacity to provide care effectively.
16) Activity:
The term 'Activity' can refer to the everyday tasks involved in caregiving, which may be physically and emotionally demanding. The study of caregiver activity levels can shed light on their burden and inform the development of strategies to reduce exhaustion and improve caregiver support.
17) Relative:
The word 'Relative' signifies the familial relationships that are central to caregiving, indicating that caregivers often provide support to their relatives. Understanding these relationships helps in framing the emotional dynamics and the social obligations involved in caregiving, contributing to the overall context of the study.
18) Village:
The term 'Village' highlights the rural context of the study, where caregiving often takes place within close-knit communities. The support systems available in such settings can significantly influence caregiver experiences, emphasizing the importance of understanding community dynamics in caregiving research.
19) Anxiety:
The mention of 'Anxiety' pertains to another mental health concern that may affect caregivers due to stressors related to caregiving. Recognizing anxiety levels among caregivers is vital for developing mechanisms to support their emotional needs, ultimately leading to better care for both parties involved.
20) Maurya:
The mention of 'Maurya' likely points to an author or researcher contributing to understanding the complexities of caregiving. Recognizing the work of individuals named Maurya can help contextualize findings and validate research efforts in managing caregiver burden and health outcomes.
21) Sharman (Sarma, Sharma, Sarman):
The term 'Sharma' may refer to another researcher noted in studies concerning caregiver burden and patient health. Recognizing ongoing contributions from scholars with this name aids in situating the broader academic discourse on caregiving challenges within established frameworks and funds.
22) Karata:
The reference to 'Karada' could signify an author involved in caregiving or health research pertinent to the study. Recognizing contributions from diverse researchers enriches the understanding of caregiver challenges, fostering a multi-disciplinary approach to exploring caregiver experiences across various contexts.
23) Cina:
The mention of 'China' indicates an international perspective within caregiving research, demonstrating how cultural contexts shape caregiving practices and challenges. Insights from studies conducted in China may inform global understanding and introduce culturally specific caregiving practices relevant to diverse populations.
24) Mental health:
The term 'Mental health' is critical in discussing caregivers' emotional well-being, as it relates to the psychological effects of caregiving, including stress, anxiety, and depression. Addressing mental health challenges among caregivers is essential for effective support and improving their overall quality of life.
25) Transformation (Transform, Transforming):
The word 'Transformation' pertains to socio-economic changes, such as the development of rural areas like FELDA that affect caregiving dynamics. Understanding these transformations can provide insight into evolving caregiving roles and challenges, enhancing strategies to support caregivers amidst changing societal contexts.
26) Surrounding:
The term 'Surrounding' refers to the environment and community support systems impacting caregivers' experiences. Recognizing these external factors is vital for comprehensively understanding caregiver burdens and can inform interventions aimed at strengthening support networks in caregiving communities.
27) Perception:
The word 'Perception' is relevant as it influences how caregivers view their roles and burdens. Understanding caregivers' perceptions can help identify gaps in support systems and highlight areas where interventions can be implemented to address misconceptions and alleviate stress.
28) Discussion:
The term 'Discussion' refers to the section in research where findings are interpreted and placed in context with existing literature. This discourse is essential for drawing conclusions, identifying limitations, and suggesting future research directions based on the study's results and implications.
29) Knowledge:
The word 'Knowledge' is significant in research, as it pertains to the accumulation of information about caregiver burdens and effective strategies. Expanding knowledge in this area supports evidence-based practices and facilitates improved support systems for family caregivers of the elderly.
30) Suffering:
The term 'Suffering' addresses the emotional and physical distress experienced by caregivers due to their responsibilities. Understanding the ways in which caregivers suffer can inform targeted interventions, enhancing the well-being and resilience of those serving as primary supports for older adults.
31) Medicine:
The word 'Medicine' relates to the healthcare aspects of caregiving, highlighting the importance of medical knowledge and resources in managing the health of care recipients. Proper medical understanding can equip caregivers with the tools they need to provide effective and compassionate care.
32) Hygiene (Hygienic):
The mention of 'Hygienic' signifies the health and sanitation practices that caregivers need to be concerned about when providing care to older populations. Ensuring proper hygiene is crucial for preventing infections and maintaining the overall health of elderly individuals receiving care.
33) Science (Scientific):
The term 'Science' indicates the empirical nature of caregiving research, underscoring the need for a systematic and methodical approach to study caregiver burdens. Scientific inquiry aids in developing evidence-based interventions designed to support caregivers and optimize care outcomes for those they serve.
34) Reason:
The word 'Reason' refers to the justification for conducting the study, highlighting the need to understand the caregiver burden. Identifying underlying reasons for caregiver stress and coping strategies can lead to more effective policies and support systems for family caregivers.
35) Campu:
The term 'Campu', potentially a typographical error for 'Campus,' indicates the academic context of the study, being conducted possibly at an educational institution. This connection emphasizes the role of academic research in exploring real-world issues like caregiving for older adults.
36) Visit:
The word 'Visit' signifies the importance of frequent interactions and the role of caregivers in accompanying older adults during medical appointments or social engagements. Visits are essential for maintaining the physical and mental health of care recipients, reflecting the caring responsibilities placed on family members.
37) Diet:
The term 'Diet' is pertinent as it relates to nutritional needs, which are often a significant concern for caregivers of older adults. Understanding dietary requirements and ensuring proper nutrition for the elderly can help improve their overall health and well-being.
38) Hand:
The term 'Hand' indicates the physical aspects of caregiving, emphasizing the hands-on work involved in providing personal care to older individuals. It symbolizes the direct support and assistance caregivers offer, highlighting the physical labor that accompanies caregiving tasks.
39) Post:
The word 'Post' may refer to statistical outputs or findings shared in academic formats. In this context, it signifies the dissemination of insights regarding caregiver burdens and the study's implications, highlighting the importance of knowledge transfer in improving caregiving practices.
40) Male:
The mention of 'Male' indicates a demographic consideration when analyzing caregiver burdens, as gender can influence attitudes and experiences in caregiving roles. Understanding the differences between male and female caregivers is important for tailoring support systems to meet diverse needs.
Other Science Concepts:
Discover the significance of concepts within the article: ‘Caregiving Burden of Malaysian Families with Older Functional Deficits’. Further sources in the context of Science might help you critically compare this page with similair documents:
Older people, Chronic disease, Urban area, Chronic condition, Palliative care, Data collection, Quality of life, Alzheimer's disease, Urban setting, Health status, Social Support, Study sample, Cross-sectional study, COVID-19 Pandemic, Study participants, Functional status, PubMed, Google Scholar, Mental illness, Caregiver burden, Mean score, Confidence interval, Mean age, Self-administered questionnaire, Level of significance, Ethical approval, Health condition, Physical activity level, Health problem, Chronic illnesses, Older adults, Functional Deficits, Depressive symptoms, Multiple linear regression, Significant P-value, Long term care, Recall bias, Survival analysis, Family caregiver, Palliative care unit, Variance Inflation Factor, Perceived social support, Spiritual factors, Research grant, Severe mental illness.
Concepts being referred in other categories, contexts and sources.