Malay Version of the Affiliate Stigma Scale for Caregivers Validated
Journal name: The Malaysian Journal of Medical Sciences
Original article title: Validation of the Malay Version of the Affiliate Stigma Scale among Caregivers of Patients with Mental Illness
The Malaysian Journal of Medical Sciences (MJMS) is a peer-reviewed, open-access journal published online at least six times a year. It covers all aspects of medical sciences and prioritizes high-quality research.
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Original source:
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Yap Siau Yun, Sharifah Zubaidiah Syed Jaapar, Nor Asyikin Fadzil, Kueh Yee Cheng
The Malaysian Journal of Medical Sciences:
(A peer-reviewed, open-access journal)
Full text available for: Validation of the Malay Version of the Affiliate Stigma Scale among Caregivers of Patients with Mental Illness
Year: 2018 | Doi: 10.21315/mjms2018.25.6.13
Copyright (license): CC BY 4.0
Download the PDF file of the original publication
Summary of article contents:
Introduction
Stigma surrounding mental illness significantly impacts not only the individuals affected but also their caregivers, who often experience what is termed "affiliate stigma." This internalized stigma manifests as negative self-perceptions and psychological distress among caregivers of patients with mental illnesses. The Affiliate Stigma Scale (ASS), originally developed to measure this phenomenon, has been validated in various languages but lacked a Malay version suitable for use in Malaysia. This study aims to validate the Malay version of the ASS (ASS-M) to assess affiliate stigma among caregivers in a culturally relevant context.
Validation of the Affiliate Stigma Scale (ASS-M)
The validation process involved a cross-sectional study with 372 caregivers from Kelantan, Malaysia. The ASS was translated into Malay using rigorous forward and backward translation procedures, followed by pre-testing to ensure clarity and cultural appropriateness. The study applied exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) to establish the scale's construct validity and reliability. The final model of the ASS-M comprised four factors with 21 items, demonstrating good fit indices (RMSEA = 0.065 and SRMR = 0.055) and acceptable internal consistency (coefficients above 0.7). This validated tool offers a reliable means for measuring affiliate stigma in caregivers of patients with mental illness in Malaysia and aligns more closely with the cultural attitudes and experiences of the population.
Conclusion
The study concludes that the four-factor, 21-item ASS-M has robust psychometric properties, making it a valid and reliable instrument for assessing affiliate stigma among Malaysian caregivers of individuals with mental illnesses. This development is crucial for enhancing the understanding of the psychological challenges these caregivers face, thereby facilitating targeted interventions to mitigate the adverse effects of affiliate stigma within this demographic. Further research is encouraged to expand the applicability and validation of the scale across different contexts within Malaysia to enhance its generalizability and effectiveness.
FAQ section (important questions/answers):
What is affiliate stigma and who experiences it?
Affiliate stigma refers to the internalization of stigma experienced by caregivers of individuals with mental illness. This stigma affects caregivers' self-esteem, emotions, and social interactions, often leading to feelings of shame or inferiority.
What was the purpose of the study on the ASS-M?
The study aimed to validate the Malay version of the Affiliate Stigma Scale (ASS-M) among caregivers of patients with mental illness in Malaysia, ensuring its reliability and cultural applicability.
How many items are included in the ASS-M model?
The final model of the ASS-M consists of 21 items, categorized into four factors: affective, cognitive, behavior, and self-esteem, measuring various dimensions of affiliate stigma among caregivers.
What were the major findings regarding the ASS-M's validity?
The ASS-M demonstrated good psychometric properties, including satisfactory model fit indices like RMSEA (0.065) and SRMR (0.055), indicating its validity and reliability for measuring affiliate stigma in Malaysian caregivers.
Glossary definitions and references:
Scientific and Ayurvedic Glossary list for “Malay Version of the Affiliate Stigma Scale for Caregivers Validated”. This list explains important keywords that occur in this article and links it to the glossary for a better understanding of that concept in the context of Ayurveda and other topics.
1) Table:
A 'Table' in research papers usually presents summarized data, showing findings in a structured format for easy reference. In this text, tables display results of exploratory and confirmatory factor analyses, providing insights into the psychometric properties of the Affiliate Stigma Scale-Malay, essential for understanding caregiver stigma.
2) Saya (Shaya):
'Saya' is the Malay word for 'I' or 'my,' used in personal contexts. The usage in this text highlights the caregivers' personal experiences with stigma, emphasizing subjective emotional responses and self-perception associated with having a family member with mental illness, thus personalizing the research findings.
3) Study (Studying):
The term 'Study' refers to a systematic investigation aimed at discovering or interpreting facts about a specific subject. In this context, the study validates the Malay version of the Affiliate Stigma Scale, showing its significance in understanding the stigma experienced by caregivers of patients with mental illness in Malaysia.
4) Family:
'Family' denotes a social unit consisting of individuals related by blood or marriage. This text focuses on the impact of mental illness on family dynamics, highlighting the challenges faced by family caregivers and emphasizing that their experiences and feelings of stigma are heavily influenced by familial relationships.
5) Upaya:
'Upaya' translates to 'ability' or 'capacity' in Malay. This term underscores the focus on the caregivers' capabilities and the challenges they face in dealing with affiliate stigma, particularly in settings involving patients with mental illness, pointing to issues of coping mechanisms within caring roles.
6) Reliability:
'Reliability' refers to the consistency of a research instrument in measuring what it intends to measure. In this context, the study assesses the reliability of the ASS-M scale, which is crucial for validating its use in measuring affiliate stigma among caregivers, ensuring accurate and trustworthy results.
7) Science (Scientific):
'Science' entails a systematic enterprise that builds and organizes knowledge in the form of testable explanations and predictions about the universe. Here, science is central to the methodology employed in the study, as it rigorously analyzes data related to stigma experiences among caregivers of patients with mental illness.
8) Rules:
'Rules' refer to explicit or understood regulations or principles governing conduct within a particular activity. In scientific research, rules govern the process of data analysis, interpretation, and ethical considerations. The study adheres to methodological rules ensuring valid conclusions about caregiver stigma through confirmatory factor analysis.
9) Language:
'Language' embodies a system of communication used by a particular community or country. In this study, language is pivotal as it involves the translation of the Affiliate Stigma Scale into Malay, making it culturally and linguistically appropriate for assessing stigma among Malay-speaking caregivers in Malaysia.
10) Indian:
'Indian' depicts individuals or groups from India. This relevance highlights potential cultural comparisons within stigma research across different countries, including the shared experiences of caregivers in India relative to Malaysia, allowing for cross-cultural insights into affiliate stigma faced by caregivers of mentally ill individuals.
11) Relative:
'Relative' signifies a person connected by blood or marriage. It emphasizes that the study involves not only caregivers but also the impact of mental illness on familial relationships, allowing for a nuanced understanding of how stigma extends beyond the caregiver to the wider family structure in mental health contexts.
12) Hair:
In the context of research methodology, 'Hair' likely refers to J.F. Hair, whose work is referenced regarding exploratory factor analysis. The mention is significant as it legitimizes the statistical methods employed in the study, drawing on established academic sources to enhance credibility in the analysis of resulting data.
13) Mental health:
'Mental health' refers to our emotional, psychological, and social well-being. This term is central to the study as it addresses the experiences of caregivers of patients with mental disorders, shedding light on how mental health issues affect not only the patients but also their families, driving the research focus.
14) Discussion:
'Discussion' is a section in academic papers where researchers interpret results and compare findings with other studies. In this text, the discussion elaborates on the implications of the study results, providing insights into the cultural relevance of stigma, thus fostering a deeper understanding of caregiver experiences related to mental health.
15) Composite:
'Composite' relates to a combination of elements forming a whole. In this text, it pertains to composite reliability as a measure of internal consistency for the ASS-M, crucial for determining how well the instrument accurately reflects the construct of affiliate stigma among caregivers, validating its effectiveness.
16) Learning:
'Learning' denotes the acquisition of knowledge or skills through experience. In the context of this study, learning encompasses understanding how caregivers navigate their experiences with stigma, which may lead to enhanced training and resources to support mental health caregivers, ultimately improving their coping mechanisms and support systems.
17) Sharman (Sarma, Sharma, Sarman):
'Sharma' refers to a surname, commonly found in India. In this study, it may connect to previous research referenced, emphasizing the ongoing conversation surrounding caregiving stigma in diverse cultural settings, allowing for an examination of parallel issues faced by caregivers globally beyond the specific study context.
18) Gold (Golden):
'Golden' typically denotes something precious or the highest quality. In this context, it may refer to 'golden rules' in research methodology, emphasizing best practices and essential considerations that guide researchers in conducting effective studies, contributing significantly toward producing dependable and valid results in the field.
19) Banga (Bamga):
'Banga' is a surname, likely referring to an author of referenced studies. This highlights the collaboration and contributions of various researchers in the field of caregiver stigma, reinforcing the importance of diverse academic insights in establishing a comprehensive understanding of the psychological dynamics associated with mental illness.
20) India:
'India' is a country in South Asia often studied for its culturally rich practices and varying health challenges. The mention in the text underscores the cross-cultural aspects of caregiver stigma, allowing researchers to explore similarities and differences in experiences based on geographic and sociocultural factors affecting caregivers.
21) Measurement:
'Measurement' refers to the process of quantifying or assessing particular attributes. In this study, it is crucial as it highlights the significance of developing reliable instruments like the ASS-M to accurately assess affiliate stigma, allowing for empirical analysis and guiding future interventions for mental health caregivers.
22) Education:
'Education' refers to the process of receiving or giving systematic instruction. The relevance here lies in assessing how knowledge and awareness about mental illness and stigma can equip caregivers, enhancing their coping strategies and alleviating feelings of affiliate stigma, thus improving overall mental health outcomes for families.
23) Anxiety:
'Anxiety' denotes a mental health condition characterized by excessive worry and fear. It’s relevant as caregivers may experience heightened anxiety related to their loved ones' mental health issues. This highlights the psychological toll on caregivers and supports the need for targeted interventions to manage their emotional well-being.
24) Hindi (Himdi):
'Hindi' is an Indian language widely spoken in India. Its relevance might indicate the broader linguistic context of the studies referenced, exploring and validating stigma measures in multiple languages, ensuring culturally appropriate assessments for caregivers across different linguistic backgrounds, including Indian and Malay-speaking populations.
25) Worry (Worried, Worrying):
'Worry' signifies a state of anxiety or concern about potential issues. In this text, caregivers' worries about stigma associated with their relatives' mental health are essential, as it affects their self-esteem and well-being, making it a key theme in understanding the emotional landscape confronting these caregivers.
26) Kecan:
'Kesan' translates to 'effects' or 'impact' in Malay. Its significance is related to understanding the psychological and emotional impacts of affiliate stigma on caregivers, guiding the research focus on measuring these effects effectively using the ASS-M scale, thereby promoting awareness of caregivers' struggles in mental health contexts.
27) Mara:
'Mara' means 'to advance' or 'progress' in Malay. This term could underline the intention behind the study to advance understanding and support for caregivers experiencing affiliate stigma, promoting advancements in resources and interventions aimed at alleviating their burdens and enhancing their mental health outcomes.
28) Dari:
'Dari' translates to 'from' in Malay. Its relevance emphasizes associations between caregiver experiences and various factors affecting their stigma, exploring how caregivers derive their feelings of self-worth or impairment from their relationships with the mentally ill family members, thereby highlighting the nuanced interactions involved.
29) Rela:
'Rela' translates as 'willing' or 'to agree' in Malay. The word underscores the caregivers' willingness to engage in conversations around mental health stigma, pinpointing their acceptance and potential collaboration in seeking help or participating in studies, which can positively impact understanding and intervention methodologies.
30) Sama (Shama):
'Sama' translates to 'same' or 'similar' in Malay. Its relevance may point to comparisons made in the study regarding similar experiences of stigma among caregivers across different populations, fostering a sense of shared understanding among caregivers, which can lead to collective support and resource-sharing initiatives.
31) Bila:
'Bila' means 'when' in Malay. This term suggests timing in caregivers' experiences regarding stigma and the onset of anxiety or emotional distress, indicating that specific moments or situations may intensify feelings of stigma, thus drawing attention to the importance of capturing process-oriented data.
32) Post:
'Post' refers to positions, updates, or notifications. In a research context, it might indicate follow-up studies or ongoing inquiries into caregiver experiences over time, enhancing understanding of how stigma evolves and the effects of interventions in their emotional health and overall caregiving roles.
33) Mud:
'Mood' represents a temporary state of mind or emotional condition. It highlights how caregivers' moods can fluctuate based on their experiences with stigma related to mental illness within their families, necessitating further research into emotional dynamics that may arise from their caregiving responsibilities.
34) Male:
'Male' refers to the gender typically associated with masculinity. In this research context, it signals the importance of examining gender dynamics in caregiving, exploring how male caregivers of patients with mental illness may experience stigma differently than female counterparts, enriching understanding of caregiver diversity.
Other Science Concepts:
Discover the significance of concepts within the article: ‘Malay Version of the Affiliate Stigma Scale for Caregivers Validated’. Further sources in the context of Science might help you critically compare this page with similair documents:
Mental health, Four factors, Self-esteem, Statistical analysis, Gender difference, Hypothesis testing, Psychological well-being, Work experience, Research team, Test-retest reliability, Cronbach's alpha, Cross-sectional study, Social isolation, Ethics Committee approval, Schizophrenia, Convenience sampling, Psychological distress, Self-reported questionnaire, Psychometric properties, Study protocol, Construct validity, Mental illness, Likert scale, Sociodemographic characteristics, Sample size determination, Factor analysis, Intellectual disability, Autism, Internal Consistency, Exploratory Factor Analysis, Cronbach's alpha coefficient, Health care provider, Behavioral components, Cutoff value, Statistical package for social science, Data Collection Process, Caregivers, Competing interests, Non probability Convenience sampling, Multivariate data analysis, Family caregiver, Cognitive component, Affective component, Correlation Factor, Internal consistency reliability, Cross-cultural adaptation, Expert panel, Bartlett's Test of Sphericity, Structural equation modeling, Goodness of fit, Bartlett's test, Severe mental illness, 4-point Likert scale, Socio-demographic characteristic, Medical record.
Concepts being referred in other categories, contexts and sources.
Malay, Social identity, Valid and reliable, Malay version, Malay language, Cultural adaptation, Concurrent validity, Factor loading, Original version, Caregivers of patients, Measurement scale, Psychiatric clinic, Mental health stigma, Stigma.