The Pilot Study of Whoqol-100 (Malay Version)
Journal name: The Malaysian Journal of Medical Sciences
Original article title: The Pilot Study of Whoqol-100 (Malay Version)
The Malaysian Journal of Medical Sciences (MJMS) is a peer-reviewed, open-access journal published online at least six times a year. It covers all aspects of medical sciences and prioritizes high-quality research.
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Original source:
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C. I. Hasanah, M. S. Razali
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The Malaysian Journal of Medical Sciences:
(A peer-reviewed, open-access journal)
Full text available for: The Pilot Study of Whoqol-100 (Malay Version)
Year: 1999
Copyright (license): CC BY 4.0
Summary of article contents:
Introduction
The shift towards patient-centered care in medicine has emphasized the importance of understanding patient perspectives, particularly regarding their quality of life (QOL). This is especially crucial for individuals with chronic or incurable conditions like AIDS, cancer, and Alzheimer’s disease, where treatment options may not lead to a cure but can influence the patients' daily functioning. To address this need, the authors translated and pilot tested the WHOQOL-100, a comprehensive international measure of QOL developed by the World Health Organization. The evaluation involved a diverse group comprising healthy controls and individuals suffering from various health conditions, which highlighted the distinct characteristics of QOL influenced by different illnesses.
The Importance of Disease-Specific Quality of Life Assessment
One significant finding from the study is the variation in quality of life perceptions among patients with different health conditions. The pilot testing revealed that certain aspects of well-being, such as emotional state and social relationships, significantly differed between the cohorts. Notably, the results indicated that factors such as stigma, particularly for conditions like epilepsy and schizophrenia, greatly affected individuals' self-esteem and social skills. This highlights the necessity of utilizing validated tools like the WHOQOL-100, as they not only provide quantifiable data on patients' quality of life but also identify specific needs for rehabilitation and support that might not be apparent from clinical consultations alone.
Conclusion
The pilot testing of the WHOQOL-100 Malay version underscores the critical role of quality of life assessments in the healthcare landscape, particularly for patients with chronic diseases. The ability to capture the subjective experiences of patients allows for better-informed clinical decisions and resource allocation tailored to individual needs. As the findings suggest, employing international collaborative tools can enhance the understanding of quality of life across various cultures, providing a comprehensive framework for future studies. By fostering a deeper collaboration between healthcare providers and patients, the potential to improve patient satisfaction and health outcomes may be significantly enhanced.
FAQ section (important questions/answers):
What is the WHOQOL-100 and why was it translated?
The WHOQOL-100 is an international measure of quality of life developed by the World Health Organization. It was translated to the Malay version to assess quality of life in the local population, ensuring cultural relevance and accurate health information.
What groups were included in the pilot test of WHOQOL-100?
The pilot test included 50 healthy controls and 250 subjects with illnesses such as hypertension, diabetes, epilepsy, schizophrenia, and co-morbid conditions. This diversity aimed to evaluate quality of life across different health statuses.
What significance does quality of life assessment hold in medical treatment?
Quality of life (QOL) assessment provides crucial insights into patients' perspectives on their health and well-being. This information can guide treatment decisions, allocation of health resources, and rehabilitation needs, enhancing overall patient care.
How was the reliability of the WHOQOL-100 tested?
The reliability was tested through re-test reliability, with the same 50 healthy controls completing the questionnaire again after two weeks. Statistical analyses, including Pearson r correlations, determined the consistency and validity of the results.
Glossary definitions and references:
Scientific and Ayurvedic Glossary list for “The Pilot Study of Whoqol-100 (Malay Version)”. This list explains important keywords that occur in this article and links it to the glossary for a better understanding of that concept in the context of Ayurveda and other topics.
1) Life:
Life, in the context of this study, refers to the overall experience and existence of individuals, particularly concerning how they perceive their quality of life (QOL) amid various health conditions. It serves a critical role in assessing how diseases and treatments affect not just physical health, but emotional and social well-being.
2) Quality:
Quality relates to the standard of life experienced by individuals, especially those with illnesses. The study emphasizes the importance of quality assessments through tools like WHOQOL-100, which offer insights into various dimensions of life satisfaction, emotional well-being, and functional capacity, influencing patient treatment decisions.
3) Disease:
Disease refers to the medical conditions explored in the study, including diabetes, hypertension, epilepsy, schizophrenia, and ischaemic heart disease. The relevance lies in understanding how these specific diseases impact patients' perceptions of their quality of life, emphasizing the need for holistic approaches in treating these chronic conditions.
4) Study (Studying):
The study aims to validate the WHOQOL-100 Malay version to assess quality of life among various patient groups. Its relevance extends to contributing to our comprehension of how different illnesses uniquely affect life perceptions, guiding clinicians in providing better, patient-centered care and treatment options.
5) Epilepsy:
Epilepsy is one of the diseases examined in the study, reflecting its impact on patients' quality of life. Stigma associated with epilepsy can significantly affect self-esteem, social interactions, and emotional well-being, emphasizing the need for tailored quality of life assessments to address these unique challenges.
6) Suffering:
Suffering encapsulates the emotional and physical pain experienced by individuals with chronic illnesses. The study raises awareness about the subjective experiences of patients, highlighting the importance of understanding suffering in terms of quality of life, thereby informing healthcare providers in their treatment strategies.
7) Reliability:
Reliability in this study refers to the consistency and dependability of the WHOQOL-100 tool in measuring quality of life. Ensuring reliable assessments is essential for accurately reflecting the patients' experiences over time, thus aiding effective clinical decision-making and resource allocation in healthcare.
8) Language:
Language is crucial in ensuring the efficacy of the WHOQOL-100 as it was translated for the Malay-speaking population. Proper language adaptation is vital to maintain the instrument's validity across different cultures, ensuring that it accurately captures local nuances of quality of life.
9) Drug:
Drug refers to pharmaceutical interventions used for managing chronic conditions like diabetes or schizophrenia. The study discusses how quality of life assessments can influence treatment choices regarding such drugs, guiding clinical decisions on the cost-effectiveness and benefits of non-curative treatments.
10) Perception:
Perception is central to the concept of quality of life, as it defines how individuals view and interpret their health status and overall existence. The study emphasizes that understanding patient perceptions allows for more personalized care and understanding of the psychological effects of illness.
11) Knowledge:
Knowledge in this context relates to the awareness and understanding that healthcare providers and patients possess regarding the implications of diseases and treatments on quality of life. It stresses the importance of integrating patient feedback into clinical practice to enhance care quality.
12) Substance:
Substance refers to substance misuse disorders, which were excluded from participants of the study. Understanding the various influences of substance use on health-related quality of life is crucial, as it can confound the assessment of other medical conditions and quality of life outcomes.
13) Teaching:
Teaching in this study refers to the educational context of the physician clinics and psychiatric outpatient services where the research was conducted. It highlights the role of healthcare education in improving awareness around quality of life assessments for both patients and medical professionals.
14) Relative:
Relative pertains to family or friends accompanying patients to physician clinics, emphasizing the contextual importance of support systems. Understanding how relationships influence patients' quality of life can inform healthcare approaches focused on social aspects of health and healing.
15) Delusion (Deluded):
Delusion is a symptom associated with mental health disorders like schizophrenia, used in the study's assessment criteria. The relevance lies in understanding how such symptoms contribute to the overall quality of life in affected individuals and the importance of addressing them in treatments.
16) Family:
Family represents a crucial social support network that can affect a patient's quality of life. The study's focus on spiritual and familial dimensions of well-being highlights the necessity of considering cultural values in health assessments and treatments.
17) Cancer:
Cancer symbolizes one of the significant incurable illnesses where quality of life concerns are paramount. The study underscores the importance of robust quality of life assessments in guiding treatment decisions and ensuring that patient perspectives are prioritized in care.
18) Misuse:
Misuse refers to the inappropriate use of substances, which is a critical factor in assessing health-related quality of life. Understanding substance misuse is essential for correctly measuring the impact of physical or mental health issues and can affect treatment outcomes.
19) India:
India is one of the countries involved in the collaborative development of the WHOQOL-100 instrument. Its inclusion signifies the diverse cultural contexts from which the WHOQOL group has drawn insights, ensuring that the instrument is sensitive to varied cultural perspectives on quality of life.
20) Field:
Field refers to the collaborative effort among various research centers, including those in countries with shared cultural values. This collaboration aims to enhance the relevance and applicability of the WHOQOL-100 tool in different cultural settings, underscoring the importance of localized understanding in quality of life measurements.
21) Male (Mālē):
Male denotes the demographic characteristic of study participants, essential for ensuring balanced representation in the assessment. The inclusion of both genders is crucial in understanding the different experiences related to quality of life, informing gender-sensitive approaches in healthcare.
22) Pur (Pūr):
Poor refers to the health status or quality of life experienced by certain groups of patients in the study. Recognizing poor quality of life is vital in identifying the need for further support, rehabilitation, or more effective treatment solutions tailored to individual patient needs.
Other Health Sciences Concepts:
Discover the significance of concepts within the article: ‘The Pilot Study of Whoqol-100 (Malay Version)’. Further sources in the context of Health Sciences might help you critically compare this page with similair documents:
Epilepsy, Medical treatment, Personal relationship, Family support, Spiritual domain, Diabetes mellitus, Physical and mental, Statistical analysis, Quality of life, Emotional well-being, Research Assistant, Control group, Different age groups, Rural population, Malay version, Health status, Socio-economic status, Inclusion criteria, Exclusion criteria, Sample size, Pilot study, World Health Organization, Subjective assessment, Confounding factors, Cognitive impairment, Health-related quality of life, Hypertension, Schizophrenia, Standard procedure, Brief Psychiatric Rating Scale, Ischemic Heart Disease, Mean age, Treatment option, Cultural adaptation, Health indicator, Healthy control, Generic measures, Teaching Hospital, Social skills, Local population, WHOQOL-100, Rehabilitation need, Discriminant validity, Test re-test reliability, Pilot tested, Clinical consultation, Health resource, Collaborative development, Interview process, QOL assessment, Substance misuse disorder, General life satisfaction, Rehabilitation for patients, Health related quality, Negative feeling, Antipsychotic, Pearson r correlation, Confounding factor, Coronary Care Unit, Oral hypoglycaemic drug, SF-12.